Aaron has cabin fever bad and rightfully so. He has found how difficult it is to get any rest in a hospital and the better he feels, the more he is ready to leave the hospital. The plan at this point is for him to leave the hospital tomorrow but stay at the hotel a few days. He will see the doctors in the transplant clinic and then have labs drawn later in the week. Also during this time we are being educated in many areas. We have met with the pharmacist to learn about his meds and today met with the post transplant coordinator. These ladies are the first line of defense if anything goes wrong or if we simply have a question concerning his health. If they can't answer our questions, then they will talk with doctors who can answer them. And thank goodness they are available 24-7.
All of our health care providers have been wonderful and taken such good care of Aaron. One can easily tell that Duke holds their healthcare providers to very high standards. No wonder they are ranked 6th in the nation. God really provided when He brought us to Durham VA ten years ago to their nephrology department. That was our connection to the transplant here at Duke ten years later. How could we have ever known the future of Aaron's health issues and many times we were ready to throw in the crowd. We have alot ahead as all is not clear sailing but much is now behind us too. Thank you again for all the prayers, texts, cards, phone calls.
Until later....
Barbara
I just read and reread your posts and cry. such a miracle of life again. Praying for your health and comfort and Jesus to lead you.
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